NF can affect anyone regardless of ethnicity or gender. It occurs 1 in every 3,000 and affects millions worldwide. About half of all cases of NF occur in families with no family history of the disorder. NF is more prevalent than cystic fibrosis, Duchenne muscular dystrophy, and Huntington’s disease combined.
As many of you know, one of our own at Westside Medical Family Practice is dealing with NF. Rylie Kimball, the daughter of our fabulous PA Cassandra Kimball, has been diagnosed with NF. Sweet Rylie is 9 years old and has inspired us as she bravely faces NF everyday. We would love for you to help Rylie in fighting NF by donating to the NF Walk for TEAM RYLIE. The NF Walk will be held in Salt Lake City on August 27, 2016. The Kimball family has a goal to raise $10,000 for Team Rylie.
You can also sign up to join the NF Walk. This is a fun event for the whole family! You can also spread the word for us on social media using the hashtag #EndNF or #NFWalk
The Children’s Tumor Foundation (CTF) helps fund research to end NF. Founded in 1978, CTF began as the first grassroots organization solely dedicated to finding treatments for NF. Now CTF is a highly recognized national nonprofit foundation, the leading force in the fight to end NF. Their mission is to drive research, expand knowledge, and advance care for the NF community in hopes of ending NF.
Progress toward ending NF is being made every day. Because of Children’s Tumor Foundation funding, there are dozens of on-going NF-specific clinical trials in existence, and 50 NF Clinics nationwide.
Please click for more info and to support TEAM RYLIE!